Tuesday, January 25, 2011
Lily tried the Animas Ping this weekend. We went to a friend's house on Sunday morning who is diabetic, as well as her daughter. Her daughter and Lily are the same age, in the same class, at the same school. She is on the Ping as well. Lily wanted to see if she liked that pump better. She liked the part that attaches to your body but didn't want to carry the actual pump. Ugh. She thinks the Pod is too bulky and the Ping is too big to carry. I think we may be stuck on shots for eternity at this point.
She was very nervous and kept asking me if it hurt. I told her no, I don't think so. I had tried the Ping myself when we were researching pumps. Now, I have a HUGE fear of needles. Perfect for the parent of a type 1 diabetic, right? So, Lily is nervous to try the infusion set and my friend comes up with the BRILLIANT idea of letting me try it first! Oh...yay! I held my breath and Lily held my hand and we attached me. It didn't hurt in the slightest. It felt like someone flicked me. I will say though, about two minutes after, it started stinging some and I just tried to ignore it.
Lily got very frustrated that evening when we discussed what she thought of the pump. She said, "I don't even need diabetes. It's so stupid." It is heartbreaking to hear her say things like this. It is heartbreaking to know that she has no choice but to have it. She asked when the cure was coming...again. How do I answer that? That is the toughest question that she asks. Birds and bees? Easy. How does a baby REALLY get out of you? Piece of cake. When is there a cure? Not so easy. I want her to have hope as we all do but I also don't want to give her false expectations. So, I just say, "I don't know but lots of people are working very hard to find one. In the meantime, we have to take care of you."
Her numbers have been decent but not nearly as controlled as with the pump. My only hope with all of this is that we are allowing her to have diabetes burnout without ignoring the diabetes. Hopefully, we are giving her the options she needs to deal with her disease in a positive manner. She is going to have this forever. I'm sure she will need a "break" every now and then from machines being hooked up to her little frame. She is even retaliating against the bracelet now.
I wonder how much of it has to do with being 7 also. It's a strange age. They are not babies really anymore but not actual KIDS either. They are entering a different level of cognitive development at this age. They are in the intuitive stage of development but about to enter the concrete stage where they see more logic. During the intuitive stage, children want to know WHY things occur. They ponder many questions. I studied kids and the stages of development in graduate school so you'd think I'd have a better handle on where mine are. It's so different when they are your own. So different. Everything I have learned goes straight out the damn window.
Posted by Kimberly at Tuesday, January 25, 2011