I was recently at breakfast with a bunch of D moms catching up and swapping stories about our kiddos. The conversation turned to our medical care here in Houston. A little background...there is one rather large hospital here, Texas Children's, and they are THE place that everyone goes for just about anything. So naturally, when most of our kids were diagnosed, we turned to them. Well, Texas Children's is a fabulous place for just about everything, except diabetes. Here's why:
1. They don't like to prescribe CGM's because they don't have the staff to train on CGM's
2. As previously stated, they are severely understaffed since they take every patient that walks in the door, insurance or not.
3. They have a protocol they follow and will not go above it for anything. Therefore, if you are ready to move to next steps in care (like learning more about nutrition, etc.) they will discourage you.
4. They think every patient and patient's family is on the same education level, Kindergarten. Yet another reason they won't prescribe CGM's. They think no one will check their children anymore
5. My favorite reason: the head of the department has told several people that THERE WILL NEVER BE A CURE.
So, we left Texas Children's a few months ago and chose to go with the University of Texas Physicians instead. They are a smaller practice and much more individualized in their care. They are even opening a new Diabetes Center very soon that will cater to the type 1 community. And, their doctors are involved with the JDRF and trying to find a cure for diabetes.
One of the mothers at breakfast was in tears after the head of the department at Texas Children's told her, "Unless your son is a rat in a cage, he will never see a cure for diabetes." How does someone like this end up working for children. How does someone like this end up being the head of a department for said children? How does someone who is so old school that he doesn't believe in new technology for our kids, end up heading up the endocrinology department of one of the largest and best children's hospitals in the world? It baffles me. It angers me. It saddens me. Sometimes a little hope is just what the doctor ordered for our families.