Tuesday, July 12, 2011

User Error??

We have had quite the whirlwind with this whole little pump round 2 thing. For starters, I read Reyna's Beta Buddies blog on sand and the Ping. I even emailed her and got directions on how to prevent the sand in the site thing. Little did I know that since we are on a trial, I do not have the caps to prevent the sand from entering the site. So, we got sand. In the site.

It had been three days since we had the first site on but for some reason, I felt it not necessary to change the cartridge. So, I just changed the site. Two hours later, high BG with ketones. So, I did a site change #2 at the beach. I'm still not sure if it was the pump or being disconnected for such a long period of time swimming. I was NOT bringing this pump in the ocean, waterproof or not.

Things went well until Monday at lunch. I got a call from the sitter that Lily was 470. I never showed her how to test ketones. Lovely. So, I left work and flew home only to discover the cartridge was bone dry. Hmmm...lesson learned there. I changed everything out and we had beautiful numbers all the way up until bed, 119, 94, 85, and so on. At my 2 AM check, 301. Well, we had mashed sweet potatoes at dinner and I'm not sure I bolused enough so I gave her some insulin, she crawled in bed with me and we both passed out. At 6:30 AM, I roll over and check her...407 with ketones at 3.7. WTF? I FLEW OUT OF BED. Lily was nauseated and her tummy was hurting. I immediately gave her insulin via a syringe. She was laying on the bathroom next to my toilet. I checked her an hour later, high 300's and 3.5 ketones. I gave her another unit via syringe. I checked 30 minutes later, 286 and 1.9 ketones so no ER.

I got ready for work in hopes of being able to make it there. She seemed okay after finally eating some breakfast so I left for work only to make it half way there and get called back home. She was 350. AAARGGHHH! I called Animas and our CDE immediately came over and replaced the pump. So far, she is doing okay. We have had no more ketones but her numbers have been higher.

So, here I sit in a frenzy...just waiting for what lies ahead of me. Surely, all of this extra insulin is going to catch up to her at 1 or 3 or 4 AM and she is going to drop like crazy. And I am going to be right there stalking her at all hours. My plan is to put her in bed with me tonight.

Basically, today was one of those days that just sucked. That's really all there is to it. It was stressful and leaves you feeling helpless. Your child's body is attacking itself and there is a war going on inside of her. And I can only do so little. It makes me angry and sad and exhausted all at the same time. It makes the rest of the world seem like it is unconquerable. It leaves me feeling anxious and unsteady. When I get that way, I get defensive and just plain not nice. So, if I crossed your path today in a blaze of fury, I am truly sorry (pest control guy, pest control guy manager, old pest control guy, boyfriend...).

After a nice pep talk from Matt and a tickle attack from the girls, I am done wallowing in self pity and I am ready to conquer again...tomorrow.

4 comments:

  1. Days like that DO suck... especially when they feel it. I hope things calm down for you a bit.

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  2. I hope all these issues get worked out & things begin to go more smoothly for Lily, and Mommy. As always, you all are in my prayers.

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  3. Feel my cyber (((HUG)))...days like that do suck. I hope things are better today. xo

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  4. Shitty. Bullshit. Hate it. But it will get better and if you need to bitch and moan you know where to find me! Love you!

    PS. Your new pic at top left. HOLY SEXY lady!

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